TY - JOUR
T1 - Expectations and Experiences of a Group of Patients Enrolled in an Educational Program for Rheumatoid Arthritis at a Specialized Care Center in Colombia
AU - Castiblanco-Montañez, Ruth Alexandra
AU - Buitrago-Garcia, Diana
AU - Arévalo Velandia, Adriana
AU - Garzón-Cepeda, Julián David
AU - Rodríguez-Florido, Fernando
AU - Sánchez Vanegas, Guillermo
AU - Santos-Moreno, Pedro
N1 - Funding Information:
This study is part of the project “Impact of the implementation of a multicomponent educational program for patients with rheumatoid arthritis in a specialized center in Bogotá. Colombia” (695180763684), funded by the Ministry of Science, Technology, and Innovation of Colombia (MINCIENCIAS), through call 807 for Science, Technology, and Innovation in Health projects – 2018.
Funding Information:
PSM has received financial compensation for conferences, counselling, advisory boards, and travel. It also has received financial support to attend academic events and project funding from AbbVie, Abbott, Biopas-UCB, Bristol, Janssen, Lilly, Pfizer, Roche, and Sanofi. RACM, DBG, AAV, JDG, FRF and GSV have no conflicts of interest in this work.
Publisher Copyright:
© 2023 Castiblanco-Montañez et al.
PY - 2023
Y1 - 2023
N2 - INTRODUCTION: Rheumatoid arthritis is a chronic inflammatory disease diagnosed in a productive stage of life. Patients with RA experience changes in their musculoskeletal system, overall health and quality of life. It has been identified that patients with RA do not have appropriate knowledge about their condition. Educational programs can provide new knowledge, accompaniment, and closer follow-up to improve empowerment and quality of life in patients with RA.PURPOSE: To describe rheumatoid arthritis patients' experiences, perceptions, and expectations when enrolling on a multicomponent educational program in a specialized RA setting.PATIENTS AND METHODS: A qualitative study was done. Patients with RA who attended a specialized center and enrolled in an educational program participated in two focus groups. The focus group discussions and the interviews were recorded, transcribed verbatim, analyzed, and emerging themes were constructed.RESULTS: Thirty-one participants were included in the focus groups. The median age was 60 years IQR (54-67), 92% were female. Two relevant categories emerged: first, the experience of being diagnosed with RA. Second, the program's ability to empower participants with knowledge and the possibility of transferring knowledge to other patients with the same condition. In addition, patients gave a high score to the expectations regarding the educational program.CONCLUSION: Understanding patients' expectations when enrolling in an educational program allows educators and clinicians to understand their motivations to create tailored programs that can contribute to acquiring empowerment in the educational process and managing their disease. Stakeholders should consider patients' expectations when implementing these interventions for patients with RA to adapt the intervention according to the patient's context and needs, which will directly affect the patient's adherence and lead to better use and allocation of resources for educational activities.
AB - INTRODUCTION: Rheumatoid arthritis is a chronic inflammatory disease diagnosed in a productive stage of life. Patients with RA experience changes in their musculoskeletal system, overall health and quality of life. It has been identified that patients with RA do not have appropriate knowledge about their condition. Educational programs can provide new knowledge, accompaniment, and closer follow-up to improve empowerment and quality of life in patients with RA.PURPOSE: To describe rheumatoid arthritis patients' experiences, perceptions, and expectations when enrolling on a multicomponent educational program in a specialized RA setting.PATIENTS AND METHODS: A qualitative study was done. Patients with RA who attended a specialized center and enrolled in an educational program participated in two focus groups. The focus group discussions and the interviews were recorded, transcribed verbatim, analyzed, and emerging themes were constructed.RESULTS: Thirty-one participants were included in the focus groups. The median age was 60 years IQR (54-67), 92% were female. Two relevant categories emerged: first, the experience of being diagnosed with RA. Second, the program's ability to empower participants with knowledge and the possibility of transferring knowledge to other patients with the same condition. In addition, patients gave a high score to the expectations regarding the educational program.CONCLUSION: Understanding patients' expectations when enrolling in an educational program allows educators and clinicians to understand their motivations to create tailored programs that can contribute to acquiring empowerment in the educational process and managing their disease. Stakeholders should consider patients' expectations when implementing these interventions for patients with RA to adapt the intervention according to the patient's context and needs, which will directly affect the patient's adherence and lead to better use and allocation of resources for educational activities.
KW - patient education
KW - patient preference
KW - qualitative research
UR - http://www.scopus.com/inward/record.url?scp=85149139173&partnerID=8YFLogxK
U2 - 10.2147/JMDH.S380001
DO - 10.2147/JMDH.S380001
M3 - Artículo
C2 - 36855463
SN - 1178-2390
VL - 16
SP - 483
EP - 492
JO - Journal of multidisciplinary healthcare
JF - Journal of multidisciplinary healthcare
ER -